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C F S
- Information International Managing
CFS/ FM
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Attempts to manage
Determinants of health care use in CFS: A cross-sectional study, scheeres.etal08.txt, scheeres.etal.08.txt, scheeres.etal08.pdf. Dr. Jason’s group
has studied the effectiveness of early educational intervention in improving
future physicians' attitudes regarding CFS/FM, lu.etal07.txt,
lu.etal07.pdf. Dr Nijs, a leading
scientist in the ME/CFS field: Can exercise limits prevent post-exertional
malaise in CFS? An uncontrolled clinical trial, nijs.etal.08.txt,
nijs.etal.08.pdf, and CFS: An approach combining
self-management with graded exercise to avoid exacerbations, nijs.etal08.txt, nijs.etal08.pdf. A 12-month follow-up study of self-management
training for people with chronic disease: Are changes maintained over time? barlow.etal05.txt, barlow.etal05.pdf. A
2005- US masters list of CFS resources, masterlist.US.05.txt.
GPs' perceptions of CFS and beliefs about its
management, compared with irritable bowel syndrome, raine.etal04.txt,
raine.etal04.pdf. Doctors need to
challenge their strong beliefs regarding medically unexplained conditions, where facts still remain unresolved, soderlund.malterud05.txt, soderlund.malterud05.pdf. Doctors can support patients' coping by supporting the strong
sides of the patients instead of casting doubt upon them, larun.malterud07.txt, larun.malterud.07.txt, larun.malterud07.pdf. CMO - UK 2002 Guidelines
In the UK the Chief Medical
Officer's "Independent Report" on CFS/ME was published Jan
2002, CMO, UK, Key conclusion (link), 2002. A major work
effort was put into this 3-year project, the results have been
disputed, CMO (UK), (pdf). UK, in
Dec 2002 published their Medical Research Council CFS/ME Report, mrc.cfs.me02.pdf. Comment, dowsett.MCRA.03.txt. Letters in The Lancet regarding
the report by Jane Colby, Dr. Chaudhuri, and Drs. Prins et al. letters, Colby et al., 2002. Psychiatrist, Dr. Sharpe wrote
this comment, Sharpe, 2002. This report has resulted in highly
disputed guidelines for the management of CFS (primarily looked upon as a
disease with fatigue as the main feature), The National Institute for
Clinical Excellence (NICE), guidelines.NICE04.txt.
Responses from patient groups, NICE.guidelines.MEAresponse06.txt,
NICE.guidelines.response06.txt. York University Report (UK)
A most important - and very
impressive - review of CFS/ME-treatment trials was released from York
University,
Bagnall et al., 2001 (pdf). A summary outlining the
principal guidelines for managing ME/CFS, interventions, York, 2002. Australian Guidelines
The vote is still out as to
whether this report represents a step forward, or backwards, in terms of
improving the Australian CFS patients' situation. One patient organization
has responded, letter, Larkins & Molesworth, 2002. The
newest guidelines from Australia, aimed at general practice, australian.guidelines04.pdf.
CBT in Multidisciplinary Approach
Dr. Pinching wrote a plan for management of
CFS, Pinching, 2002, and Drs. Sykes
& Campion wrote on the psychological treatment, Sykes & Campion, 2002. Dr. Klimas
has published a brochure on this issue, Klimas,
2002. A literature review concluded that the etiology of CFS is still
not understood and that doctors’ attitudes need revision, Stein, 2001. One Dr. Richardson wrote a 2002 ME-review:
Guidelines for doctors,
Richardson, 2002, and another Richardson a smaller article for
nurses, Richardson, 2002. For a review
on CFS treatment for family physicians,
Craig & Kakumanu, 2002. Follow-up of a rehabilitation program, taylor.etal06.txt, taylor.etal06.pdf. Multidisciplinary Approach to FM
Exercise in combination with
other approaches is recommended in a review, Oliver et al., 2001. A
2002-Cochrane review sums up various approaches, Karjalajnen et al., 2002. Predictors of
improvement were difficult to define, King
et al., 2002. EULAR
evidence based recommendations for the management of FM, carville.etal07.txt, clauw07.txt,
EULAR07.txt. A number of articles were published on the managing
of FM in 2002, pointing out the lack of clinical trials, Barkhuizen, 2002, hope for
future "rational" managing,
Bennett, 2002, the need to manage peripheral pain, Borg-Stein, 2002,
non-pharmacological strategies Burckhardt, 2002, a realistic
approach, Littlejohn & Walker, 2002,
dysautonomia,
Martinez-Lavin, 2002, sleeping
disorders, Moldofsky, 2002, the various
symptoms in all,
Silver & Wallace, 2002 and the office
management, Goldenberg, 2002. Can GP's Manage?
This question was answered
negatively in a preliminary Australian study, Whitehead & Campion, 2002. Residential
rehabilitation courses were studied,
Harrison et al., 2002. |
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