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C F S
- Information International Prognosis of CFS/ FM
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Life Expectancy
All-cause
mortality was not increased according to a CDC-study on 1200 fatigued
patients followed up to14 years, smith.etal.06.txt,
smith.etal06.txt, smith.etal06.pdf. Jason
et al. studied causes of death in 166 deceased CFS patients. They found the
3 most prevalent causes of death were heart failure, suicide, and cancer,
accounting for 59.6% of all deaths, jason.etal06.txt,
jason.etal.06.txt, jason.etal06.pdf. The
prognosis for the most sick CFS patients is not encouraging, Hill et al., 1999, and
Tiersky et al., 2001. A
pilot study on risk factors for severe CFS, wernham.etal05.txt. Only
recently has CFS been given as an official cause of death, news.cfs.death06.txt. Anecdotal connection of CFS
with cancer has not been confirmed,
Levine et al., 2000. Patients with suspected FM - but not with
confirmed FM – had higher risk of cancer, dreyer.etal07.txt. The fluctuatious nature
The waxing and waning of
symptoms has given rise to false optimism in connection with dubious
treatments. The relevance of phase theory in CFS is discussed, Jason et al., 2003. One study underscores the significance
of fluctuation, nisenbaum.etal03.txt, nisenbaum.etal03.pdf. Prognosis studies
Complete recovery from CFS was
found to be rare in this 9 year follow-up. Patients with less severe illness
at the initial clinic visit were more likely to have a positive prognosis, Pheley
et al., 1999. Improvement in
symptoms is more likely, cairns.hotopf05.txt,
cairns.hotopf05.pdf. Long-term
predictors of outcome in fatigued employees: a 4-year follow-up study, leone.etal06.txt, leone.etal.06.txt,
leone.etal06.pdf. A review of studies on CFS and work, taylor,kielhofner05.txt,
taylor,kielhofner05.pdf. In my own 5-year follow-up
study of Danish CFS patients a recovery rate of 6% was found, andersen.etal04.txt, andersen.etal04.pdf.
In our new 9-year follow-up study of the same patients, we found similar
results, andersen.etal07.txt, andersen.etal07.pdf. A 10-year follow-up of the epidemic in Dr. Jason's group in Chicago published some
interesting information on prognosis relating to the first wave of
fatigue, Taylor et al., 2002, Taylor
et al., 2002 (pdf). A (small) Japanese study divided CFS patients
into infectious versus non-infectious cases, finding prognosis better for
infectious cases,
Masuda et al., 2002 (short), Masuda et al., 2002 (pdf). The Development of CFS in severely fatigued employees: predictors of outcome in the The prognosis of different fatigue diagnostic
labels, hamilton.etal05.txt, hamilton.etal05.pdf. Predictors of outcome following treatment for
chronic fatigue was more difficult to define than expected by these
psychiatrists, darbishire.etal05.txt, darbishire.etal05.pdf. Physical health does not
deteriorate with time, matthews.komaroff07.txt,
matthews.komaroff07.pdf. Studies on FM
One study found that FM
patients were doing fairly well after 6 - 8 years time, Mengshoel & Haugen, 2001. A 2002-study
had contacted patients 6 years after first contact, and found little
improvement, but better coping,
Baumgartner et al., 2002. A 2003-study found patients
"fairly well" after 3 years,
Fitzcharles et al., 2003. Posttraumatic FM was still present 3
years after the injury in 60% of the patients, Neuman et al., 2003. Prognosis adolescent CFS
The respected Dr. Bell
published a 13 year follow-up study on adolescents, who as children were
diagnosed with CFS. Their
results were somewhat encouraging compared to adult CFS: Eighty percent
of the adolescents were better or much better over time, and only 20% were
the same or worse, Bell
et al., 2001, Bell
et al., 2001 (pdf). Review articles also conclude that adolescent
ME/CFS may not be so chronic after all,
Krilov & Fisher, 2002., editorial: smith04.txt. Adolescents with less than 6
months fatigue have better outcome, gill.etal04.txt,
gill.etal04.pdf. No association between maternal
or child psychological distress, academic ability, parental illness, atopy,
or birth order and increasing risk of lifetime CFS/ME. Sedentary behavior
increased the risk, viner.hotopf04.txt, viner.hotopf04.pdf. Using the milder |
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